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Rose-Mharie Åhlfeldt

First name
Rose-Mharie
Last name
Åhlfeldt
Hägglund, M., Kharko, A., Bärkås, A., Blease, C., Cajander, Å., DesRoches, C., … Johansen, M. (2023). Is Patient Online Record Access Ready for the European Health Data Space : A Nordic Viewpoint. Journal of Medical Internet Research, 26, e49084. http://doi.org/10.2196/49084 (Original work published 2026)
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Huvila, I., Rexhepi, H., Moll, J., Zolbin, M. G., Blease, C., Bärkås, A., … Kharko, A. (2024). Affordance Trajectories and the Usefulness of Online Records Access among Older Adults in Sweden. Digital Health, 10, 20552076241287354. http://doi.org/10.1177/20552076241287354
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Hägglund, M., Kharko, A., Hagström, J., Bärkås, A., Blease, C., Cajander, Å., … Johansen, M. (2023). The NORDeHEALTH 2022 Patient Survey: A Cross-Sectional Survey of National Patient Portal Users in Norway, Sweden, Finland, and Estonia (Preprint). Journal of Medical Internet Research, 25, e47573. http://doi.org/10.2196/47573
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Rexhepi, H., Moll, J., Huvila, I., & Åhlfeldt, R.-M. (2021). Do you want to receive bad news through your patient accessible electronic health record? A national survey on receiving bad news in an era of digital health. Health Informatics, 27. http://doi.org/10.1177/14604582211035817
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Rexhepi, H., Huvila, I., Åhlfeldt, R.-M., & Cajander, Å. (2021). Cancer patients information seeking behavior related to online electronic healthcare records. Health Informatics Journal, 27. http://doi.org/10.1177/14604582211024708
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Nurgalieva, L., Cajander, Å., Moll, J., Åhlfeldt, R.-M., Huvila, I., & Marchese, M. (2020). I do not share it with others. No, it s for me, it s my care : On sharing of patient accessible electronic health records. Health Informatics, 26, 2554–2567. http://doi.org/10.1177/1460458220912559
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Rexhepi, H., Moll, J., Huvila, I., & Åhlfeldt, R.-M. (2020). Do you want to receive bad news through your patient accessible electronic health record? A national survey on receiving bad news in an era of digital health. (P. Bath, P. Jokela, & L. Sbaffi, Eds.). Kalmar and Sheffield: Linnaeus University, University of Sheffield.
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Rexhepi, H., Huvila, I., Åhlfeldt, R.-M., & Cajander, Å. (2020). Cancer patients information seeking behaviour related to online electronic healthcare records. (P. Bath, P. Jokela, & L. Sbaffi, Eds.). Kalmar and Sheffield: Linnaeus University, University of Sheffield.
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Rexhepi, H., Åhlfeldt, R.-M., Cajander, Å., & Huvila, I. (2018). Cancer patients’ attitudes and experiences of online access to their electronic medical records: A qualitative study. Health Informatics Journal, 24, 115–124. http://doi.org/10.1177/1460458216658778
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Huvila, I., Moll, J., Enwald, H., Hirvonen, N., Åhlfeldt, R.-M., & Cajander, Å. (2019). Age-related differences in seeking clarification to understand medical record information. Information Research, 24, paper isic1834. Retrieved from http://www.informationr.net/ir/24-1/isic2018/isic1834.html
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Forthcoming presentations

  • Keynote at Digital Heritage Summit 2026
  • Information practices are environmental
  • Session: Archaeological data work: Interdisciplinary perspectives to interdisciplinary practices
  • Tracing interdisciplinarities of archaeological data work: identifying and turning evidence visible

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Isto Huvila

(né Isto Vatanen)  
Professor in  
Information Studies  
Department of ALM  
Uppsala University

Docent (adjunct professor) in information management  
Information studies  
Åbo Akademi University

Isto Huvila is working on management and organisation of what we know and how we know in contexts ranging from social media to more traditional arenas of learning and working. My special areas of expertise are organisational information, social media, health, archives, libraries, museums and cultural heritage.

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